Slip Sliding Away

In a lot of ways I’m still trying to stop the slip so please bear with me, I’ve tried to write this a few times and it just comes out in disjointed gibberish.  I will try to keep everything as simple as I can without too much fluff, which is when I get generally get lost.

I don’t remember what day last week I slept through my early AM pills.  Because it was late I didn’t take them but I did take the one I should have taken after breakfast.  It had been close to a full week since I was taking all my meds early, morning and evening pills.  I was barely holding on.

Tuesday I finished my CNA course and we had a certification program where we were all presented our papers which is my ticket to take the state test to start a new path.  It wasn’t that big of a deal to me until it was.  I made a point of getting a picture so I could put it in my journal.  I looked horrible.  The crush of the room was bothering me and ramping up my already jarred psyche so when it was over and the eating began I left.  I knew if I started to eat I wouldn’t stop and no one and nothing would be spared.  And there was food waiting for me at home and I could binge to my hearts contempt.  What I forgot to mention is that though I laid out my meds the night before, I didn’t take them…..and you can repeat that all the way to Saturday morning but by then it was too late.

Thanksgiving for my family was on Friday.  I was in a full blown anger hurricane and no one was safe.  I stayed in the corner and pretended I was ‘tired’….well, tired of all of them.  I ate only what I wanted; turkey, potatoes and dressing.  I was kind to the kids, although the youngest was put on my lap and when he felt the disruption in my aura he began to cry and try to get away from me….I really couldn’t blame him.

Saturday I took my pills again but my heart was racing, my breath was shallow, my blood pressure was all over the place and I just wanted to scream – I took a tranquilizer….and tranquil I did become.   My emotions flattened out and I slept for three hours, but my mind still hasn’t returned, it still can’t grasp anything and hold onto it for a long time.  Words slip off the tip of my tongue, ideas float just out of reach and my memory pulls up the wrong information and my mouth can’t stop it from tumbling out.

I’m back on my three doses a day.  I don’t know if I need to continue to slip to get back down to stable ground or if I need to start the climb again to where I was.  I just hope which ever it is it doesn’t take me back to a place I don’t want and can’t be again.   If there is any take away from this whole hellish experience is: DON’T GO OFF YOUR MEDS.  I’m not well, I’m not better, I’m not quitting.

Crossing the Line

Sorry, I’ve been distant, silent even.  Mostly because I did something wonderful and it confused me.  Let me explain…..

I went on vacation with my family, it was a wedding onboard a cruise ship and we were invited to join the happy couple for the honeymoon.  We all had our own rooms of course.  I brought a long two books; one pleasure and one enlightening.  I chose the Enlightening book first.  Before the end of the first day at sea I grabbed my book and went up to the top deck, sunglass/reading glasses in hand and a hat and read.   Within the first ten pages I came across a statement (that I can’t quote because it’s not exactly what I read but what I needed to hear) to the effect of:

There comes a time when introspection becomes indulgent.

It struck me so perfectly at that moment and I realized, every aspect of me said it was time to move on and move forward.  There was nothing more I could do with the deep dives into who, what, and why that makes me who, what, and why I’ve become.  I needed to put myself out there and try to put into place what I have learned, to build on the foundation that I have laid and hopefully not have any dead bodies hidden in the cement.  At many points in life we need to stop and do the self evaluation/inventory/mind-tripping that helps us move to the next level, but I feel like I’m all caught up now….

Crossing that line, the invisible line between the two worlds instigated a miraculous change in my psyche: I’m happy, I’m hope-filled, I have more energy, I am making plans for my future and are anxiously waiting to put that plan into motion.  (Mom is still doing well, so things are still as they were).  Crossing that line also gave me the push I needed to start  whittling down my meds.  I’m off one of my anxiety pills completely, I’ve cut my Lexapro in half, I’m still taking all my puppy uppers (Welbutrin).

I don’t know if I’m ready to go down another 10mg on my Lexapro.  This last jump down brought up the realization that I don’t really have the skills that I thought I had when  I was fully medicated, and emotions are starting to break through the chemical barricades.  I’m getting caught in the angry loops, but I have more success of talking myself out of them before I spin out of control.  I get overwhelmed and stymied easily , but if I just plug away at it, it gets done.  I’ve had to put some exercises into place so I could deal with the mental stuff, one of those is writing every day.  Which brings me back to the confusion….

For the longest time I used this blog as an integral part of my self exploration.  Anything too private was taken care of in my journal, and I’m back to journaling now too, but if continual introspection is self indulgent, it’s not something I should be engaging in if I want to move forward in my life.  And I’ve made some major strides in my life from March to now, but I didn’t know if I should start a new blog post-depression to write all the plans and the executions with both successes and failures or if I should just continue here; or should I do it at all?  I miss it, so I need to keep doing it .  I found that blogging my personal truths out into the world is an act of courage and bravery that makes me feel more courageous and brave in the real world. I think it’s not self indulgent if it isn’t wallowing in the dark but instead sharing the joy and excitement of rediscovering my life now that I’m outside the void.

Any input from my readers would be helpful.  Please,

Surrender Follow Up

I can breath again.  I never understood in the OA book how they wanted me to surrender to a Higher Power, I thought I had given myself to God and Christ years ago, but after the surrender, I realize I really haven’t. I don’t think I fight against Heavenly Father, per se, but I don’t always do things His way (meaning I’m addicted to the hard way) and in that I need to surrender my faith and trust that He will carry me through. I know if I could I would have a higher sense of the peace and comfort I’m feeling now in what I’m doing in my whole life. I can be a stubborn idiot in the face of simplicity..

On the darker side of the depression, I won’t surrender.  Yesterday I was close to tears more than thrice and I have no idea why.  It’s annoying to have emotions.  I know I will eventually need to give in and feel them again, but right now is not a good time.  I’m fairly happy, I’m hopeful and I’m planning for my future.  I have everything I need.  My wants on the other hand……

Gobsmacked by Life

So, when last we met, dear reader, I was embarking of under-employment but ever so hopeful things would continue on the course I had set it on.  I stopped climbing the walls, so to speak only to have the freaking wall fall on me!  I planned on giving myself one week off from work, which is reasonable since I hadn’t really had five straight days to myself since, well, since I don’t remember when….and starting the next week Mom shot up a temperature to like 103.1 and then it would go down, then back up.  I got the temporal thermometer to see if the digital one was not digitizing the information the way we wanted but it was telling the truth.  Which basically means now I have a really cool thermometer…..but I digress.  I called 911 and had them take her to the ER in Mountain View.  If there is one thing I can say about being on anti depressants and anti anxiety SSRI and dopamine enhancers is that when you are faced with something serious your emotions shut down and you can focus on the task at hand get things done. Well, sort of.  Apparently  was being a real pain in the caboose and my humor wasn’t what my sisters would have liked.  After a few long, tiresome hours they realize that Mom was dehydrated.  Who knew you ran a temperature when you are dehydrated.  S. had heard about it when she went through her medical assistant training but she wasn’t sure.  Once that was determined they decided to give her IV fluids and see if it brought her double digit BP back to the normal range….well, normal for an 85 year old woman.  They admitted her around 2 am, I went home and had dinner, took a chill pill and went to bed around 4am.

What I learned from this experience is that 1) the right hospice agency makes all the difference and 2) never make plans that you can’t put off for later.  We’ve changed our hospice agency which is more aggressive towards the pulmonary set, unlike the last one that would have been happy for me to give Mom morphine to calm her down and let her die in her sleep.  The hospital doctor sent her home with a nebulizer and between me and K we have been militant about her getting her treatments, eating whether she wants to or not, and drinking at least two quarts of water a day she is gaining ground.  Just as she started to get back on her feet the holidays descended like a biblical plague.  Okay, so I’m not a bit holiday fan but being broke, being literally tied to the house like some house bound prisoner because Mom doesn’t like to be alone and “misses me” even if I’m in the other room.  Did I mention she’s almost as deaf as a door knob?  (hearing aids are on the list of things to do in the New Year).

I guess what I’m blathering on about is that I’m tired, I feel like a well used rubber band that is still functional if you don’t push it beyond it’s but when too much pressure is applied  it will loose the last of it’s elasticity and then when pushed father will snap and crumble to bits.  My doctor thinks I’m doing fine, but then we didn’t talk about how I imagine sawing through my arms again, or how I want to use a razor to carve a cross hatch pattern from my wrist to the bend in my elbow.  I won’t do it, I know I won’t, I’m too big of a sissy when it comes to physical pain but he seems to think it is something that should be reported to him.  I wish he was tech savvy enough to just read this and prescribe accordingly.  I can’t go up any further on m=any of my meds so what other choice does he have then to tell me I’m doing good and hope the placebo effect will see me through until the stress passes?

I’m pretty sure this will be my last entry for 2014.  May the New Year be bright, healthy and prosperous.  Thank you for reading and following me.

Honest Gratitude

I’m not alone, for the longest time I thought I was the only one in my peer group that was stuck inside the void.  Of course I had isolated myself to the point that I was the only one I saw mostly and honestly, I was ignoring me.  I shrunk away from all the love at church because I didn’t want them to know, but I knew they knew, and I was interpreting their love as pity.  I knew they knew because years ago for an essay in my genealogy class, Mom telling people to get sympathy for the heavy burden I am to her, and I’m pretty sure it’s written across my face most of the time.  But to face them, to accept their love, to say “I’m doing well” when they I was lying made me just want to stay home, so I did.

I’ve been going back to church, and I’m hoping to make it a life-long habit from here on out.  I’ve been listening to the topics of conversation, the messages between the topics and I’ve found that a lot of people that appear so happy, as if they have everything they want/need/desire are getting sucked in, stuck in the void that I’ve been in.  The insidious nature of the void is that it is a palpable darkness that your eyes are for all intensive purposes blind.  No one calls out encouragement while they’re in there because no one wants to be found or helped or comforted because we don’t deserve it.  Or, so’s my experience.  The darkness can be a blinding light to some, a red ethereal heat, or a frigid cold that burns to the touch but it is our own hell.  The trouble with having your own personal hell is that no one can help you decorate it because they can’t see it.  But they want to do something to “brighten” things up to help you.  People brighten up your hell just by being there, not by making you explain and explain and explain how things are working inside your head only for them to look at you and honestly say “I don’t get it.  Why can’t you just make up your mind to get over it?”  For me, when someone would say that, I’d want to scream and throw things at them…preferable food that stains or smells bad.

This time around, hopefully my last time around, I’ve been honest.  I’ve been truthful with people when a question is asked that I am capable to answer from my experience.  I can’t address their experiences directly because I don’t know them.  It’s like having someone explain how salt tastes to them without using the word salty.  It can be done, but it’s really hard to know the words you need to describe it.  By being honest about my depression, I’m hoping to rip the mask off the face of depression and stare at my own face and not be ashamed, to abolish the stigma from you, your family, your friends and those that just think you should get over it.  Knowing you aren’t alone, even though your experience is unique, the concept of depression is ubiquitous is a comfort to some, a sympathetic pain to other and a reality the world needs to accept, understand and get over their issues about it.

To be honest, I’m so grateful for this depression, this time around.  (yes, that’s probably the meds talking).  What I’m grateful for is the opportunity I’ve gotten to stitch the tear, rebuild the destroyed and fix the broken so I don’t end up here again.  I’m not sure that I won’t.  I’m still very easily sent of kilter if something happens or my plans are upset in any way, but I balance out faster, I gather my strength and I push forward.  Honesty and gratitude seem to be working hand-in-hand for me.  I think I need to stop using this site as a pity party on ePaper and start using it to be grateful, honest and helpful for others.  It’s just figuring out how to do that and making the time for it and not using it as a way to hide from the issues I’m dealing with

Stay tuned, boys and girls, it looks like things are going to change (for the good, I hope)…….

Prayer: The Hearts Sincere Desire

I’ve been praying again, at least making an honest effort.  I still forget that I’m praying sometimes and let my mind wander but I pull it back as quickly as I can, apologize to my Father in Heaven and push forward.  It seems odd that prayer is so hard for me.  That it was nothing before but “Please, Father, get me through today.” (And He did) But because of my meager efforts I’m no longer extremely anxious about taking the forward steps I need to into the haze of uncertainty because I know He will prepare a path for me even if all I can see it one step at a time.

It’s so hard to describe the sensation of this for me.  I’ve always known there was a higher power (mine is God/Heavenly Father/Elohim) for as long as I can remember.  At one point I wanted to be cloistered away as a nun;  a life of service and reflection apparently appeals to the writers heart.  However, I chose the secular world and now my realities are 1) my job is ending 2) my education to be a phlebotomist is a joke in the industry 3) I’ve not stuck anyone in years and 4)it’s going to pay less (especially a non-union job) than the pittance I’m making now. (I’m not even going to go into the lack of writing, lack of journaling and lack of any creativity in my life right now).  My mind races and then collapses from exhaustion.  I think R.E.M. said it best:

It’s the end of the world as we know it

And I feel fine

I’ve never been able to really make plans for my future because I’ve always had the concept hard wired into my mind “Live now for tomorrow we die”.  So now, I pray about it, when the anxiety, fear and general loathing of change overtakes me and then a calm comes and the gentle words of peace and comfort scatter the emotions like cockroaches in the light and I feel fine.

Though I’m still anxious about a lot of things:

  • Mom’s ultimate destination and getting her ready, getting me ready, fear of walking in on her and finding her when I’m alone
  • Money lasting to the end of the month and not being able to buy stuff with my own money
  • Getting money together for my nephews wedding (This is new one, he’s going on a cruise and we’re all invited)
  • Job ending
  • Job searching
  • Being trapped forever with Mom
  • Never getting my eating under control and never being able to eat Golden Mega Stuff Oreos again
  • Dying before I have a chance to live
  • Being around people
  • Dealing with my family and the anger it stirs up in me and the fear of not being able to control it around them

That’s just off the top of my head, the things that I can pick out when it’s spinning.  Though I know everything in my heart will be okay, the chemicals in my brain still won’t settle down and leave me in peace.  I’m hoping to replace my emergency anti-anxiety pills and the half one I take every day, with meditation and prayer.  It is my sincerest desire to be trusting and rest in the Lords embrace and know everything will be okay.  Though my heart is starting to trust my head is still overly paranoid and distrusting of everyone and everything, both physical and spiritual.  It’s not the end of the world, just a change, and I will be fine.  Prayer needs to be my bridge from this life to the next, I can feel that in my heart to be true and I need to be more persistent in following the whispers of hope and orient myself to the feeling of warmth and comfort the Spirit provides when I follow my heart.

The Best Laid Plans…….

Okay, here’s the sitch with not going to school this semester.

After Mom’s little tirades and big tirades about how I wasn’t earning my keep, how everyone keeps a 40 hour a week job and comes home and cooks dinner, does a load of laundry or two and then cleans and picks up after themselves……then swinging over to I’ll be too scared with you sleeping in a camp site with a knife for protection, they’ll just take it away from you and slice you open.  They enjoy stuff like that…..You don’t care about me.  I’m afraid I’m going to die alone and even with you here, you can’t even be helpful to me for that…..  I’m going to stop now, my head is starting to hurt.  Even with all her blustering I was set on going to school.  I figured if I could work from home on Thursday, my sister coming in the evening to take care of her I could skip the traffic and nap before class and then with chemical aids like 5 hr. energy and soda I should be able to stay awake on the way home and not have to stay at the state park.  Easy peasy.  She wasn’t going to talk me out of going to school because she was scared.  I was kind of looking forward to being that close to the beach to hear it in the morning when I got up.

I talked to my bestest friend in the world and she just simply said “There are too many moving parts to that plan to work well,” and I realized she was right.  I think if she said the exact same thing as what my Mom said I probably would have listened to her.  Yes, that sounds like an immature reaction on my end, but I know my BFF wants what’s best for me whereas my Mom just wants whats best for her, so I don’t trust any of her advise.  I realize that is part of her narcissism, and I know in some ways she can’t control it.  She has to realize something is wrong with herself before she can start changing, and she will never see the error of her ways.  So after more thought and prayer and thinking as to what I could do to move my plans forward if I didn’t attend school.

So here’s the plan:

  1. I pay for my Continuing Education Credits
  2. I study and pass the test
  3. I pay the money and fill out the form
  4. I get my certificate back

With my certificate in hand by January, I will be able to look for a blood letting job and sign up for the online course for medical terminology and put on my resume that I know my education wasn’t very accredited but I am going to an accredited college that will teach me the right stuff, and by being so proactive in my education it will make me look like a good egg.  Everyone wants good eggs, bad eggs smell to high heaven, and even if you get rid of them their odor lingers for days/weeks/months to come.

One thing I found out while researching state parks for California.  They have a special pass for the disabled.  You pay $2.50 for the form processing and then you get 1/2 off your cost for camping and day use of the park.  I looked at there definition of “disability” and depression is one of them.  I realize that as things are getting better for me in that arena I will need to apply for it soon while I’m still in this maelstrom of emotions.  I want to start camping.  Glamping for longer times in the wilderness, but camping for weekends anyway.  I can afford that, it might be all that I will be able to afford for vacations in my life so I might as well embrace it now and get the stuff that I want and need for the wilderness experience.

Wanting Vs. Doing Vs. Needing

I want……….

  • to go back to school to spiff up my phlebotomy credentials (long story)
  • to write at night and on weekends
  • to have a clean and neat room, with my bed made and laundry done
  • to go on hikes on weekends and maybe learn to Glamp from time to time
  • to make jewelry for gifts and for myself….maybe even to sell
  •  to keep working a full time job so I can have a full time pay

Vs.

I’m doing……….

  • 8hrs a day on a less than taxing job but still need to take a nap in my car
  • I’m registering for school but will have to do it in person instead of online, terrified I’ll sleep through it or fail
  • I clean my room by turning off the light and turning on the TV
  • I get out of bed late on weekends and then require a few naps to get through the day
  • The thought of pulling out and putting away all my jewelry making stuff is exhausting in itself
  • Honestly, I don’t know how I’ve been able to keep a full time job.

Okay, I’m tired right now. I really have no reason to be, other than I stayed up too late last night. But when I’m in these moods I wonder if I will ever be able to have a normal life, if I’ve ever had a normal life. My Mom is insistent that I just need to “push through” and “fight back” and basically “get over it” and I will be fine. Sometimes I think she’s right, very rarely, and I try and spin myself back out of control. I think I need a routine…a “doing” and slowly build from there. I keep changing this idea of what my day should look like beyond going to work, going home, going to bed, getting up and going to work, going home, going to bed.

Right now I’m thinking that Mediation is the direction I should be going in. Of course I can’t do that until I have a space cleaned in my room, which means I need to work in my room, which means I need to do my laundry and find a meditation pillow and make hand knotted-silk strung beads and a tassel for meditation……See how the wanting and the doing are always dancing?

I need to……….

  • JUST meditate

    • I don’t need a clean room to do it
    • I don’t need my laundry clean to do it
    • I don’t need a special pillow to do it
    • I don’t need specially strung beads to do it (yet, I want them because it means shopping and creating)

The only thing I need to do is make time. Or in my case take time.  And take comfort in the hope that the needful will allow for the mental space for doing the wanting.

Good Bye, Mr. Williams

I wanted to express my deep sadness at the passing of Robin Williams.  It saddens me that a man who brought so much joy and happiness to so many people was suffering so deeply inside.  I know the angels in heaven are falling off their clouds with laughter, but it doesn’t soften the tears on earth.  You will be missed.

The End is Nigh….or not.

The diaphanous veil between the living and the dead is getting thinner.  I can feel my father closer, my brother.  They are waiting.  I can’t really say this to my family because we’ve been saying “Mom won’t make the next XYZ” for the last 24 years. It’s gotten to the point where we won’t believe it until we see it.  And who knows how long a person can.

I want her to have a good end of life, but I don’t know how to bring that about.  She has a DNR, C. will make the final judgment if we need to turn off her machines and pacemaker. (there will be mighty discussions between the three of us girls before hand, it’s not just hers alone)  Her cremation is paid for, our plan to have a boat take us out to the Golden Gate Bridge or beyond to allow her to travel the way she never could in mortality.   I guess now it’s just a matter of all the family to make amends with their own soul and forgive grandma/great grandma and let her go being loved.  She wasn’t trying to hurt us, not consciously anyway.  She wanted what was best for us, even if what she wanted was skewed towards what she needed more, but truly is that her fault?  She relied on the way she was raised, and the pain she experienced on our side of the conversation must have been worse as she believes she wasn’t loved or wanted.  Mom wanted us, she loved us to the best of her ability and with the few tools she was given, and isn’t that all what we can do?  Holding someone to a standard you hold yourself to is just as unfair, lacking compassion and sincerely extremely selfish to the point of narcissism.  True narcissism isn’t something you choose, it’s not like fat where you can go on a diet and emerge a shadow of what you used to be….Narcissists don’t believe the need help or to change, the rest of the world should.  I wish I could take this understanding, acceptance and love and share this enlightenment I’ve been given to my family but I can’t, and even if I can will they have the frame of reference of the months past to understand it with.  Or the desire to truly forgive her and let her go?
The depression and the tentacle like grip the other accessory ailments has robbed me of the ability to feel a lot of feelings.  Well all feelings except anger.  With the containment and proper placement of that merciless flame  the other emotions are coming to the surface and I can say something I never thought I would be able to say.  I love my mother.  I started this journey hating her and silently planning her funeral like a mother plans her daughters wedding.  My biggest fear was that I would hum “Ding Dong The Witch Is Dead” in my pew at her funeral, now I’m not afraid to loose her, or my reaction to it, but mostly that I will be unable to take care of myself without her to remind me to eat, to wake me up when I fall asleep on the couch, to guilt me into cleaning up the house. (I know, I’m a grown up, for heaven sakes, I should be be doing that for myself already).
This feeling of love for my mother and the spiritual lifting I’ve had over the last several weeks makes me wonder if that’s why I am able to feel the veil so close.  The only thing you really take with you is your knowledge and your love.  Love you give is the silken strands that weave your body for the next life and the love you receive is the decoration.  Or so is my belief.
(I’m not saying my Mom is in the throws of dying, she’s not.  I do know her body is starting to give up and betray her in ways she never thought it could.  I’m just saying there are people waiting for her and I can feel their presence.  It could happen today (better not it’s my birthday and her sister already died on my birthday) or it could happen next week/month/year/decade etc.  My nephew J has a saying “At the end of time there will be Dick Clark (rip), Grandma and cockroaches.”  There are days when I look into her eyes and see the steel will to live and I actually start to believe that he isn’t far from wrong.)