The Bluffers Rebuff

I miss Sammy.  I miss the way she says ‘Hello’ in the morning, or says “By by” when I leave but mostly I miss knowing there is one living, breathing person* in the house that loves me unconditionally even when she bites me.

Mom and I have plastered over the dings in each others walls, though I didn’t hurl anything heavy, she took asserting my boundaries as a direct hit and then taking Sammy away so she wouldn’t breathe in her feathers as a killing blow.  Covering the wounds works like turning off the lights instead of doing the dishes….if you can’t see it, it never happened.  I was told that I was breaking a dying woman’s heart by taking Sammy to my sisters, but if Mom truly is allergic to her feathers then taking Sammy out of the house was the only recourse.  It’s not like I would allow her to live outside even if she could.  It is still seen as an intentional, malicious action against my mother, which was not my intent, and I tell her I don’t intend on having Sammy stay away forever.  I’ve ordered air filters/purifiers/cleaners for her room and the family room and once she can breathe okay I will bring Sammy home as a test.  Mom on the other hand feels she will never be able to be in the same room with her again.  It is her way of bluffing my bluff, to see who could last the longest without her.  Well, not to be too macabre or put too fine a point on it, I’m the one that can live longer without her.  That’s not why I’m not going to buckle to her will, or maybe it is, I dunno sometimes what is going on in my head.  In a lot of ways I’m still very angry at my mom for the way she treated me, talked to me, acted towards me, and yet knowing that it’s coming from a place of fear and her interpretation of everything as pain she doesn’t know (or want to know) any better.  I can’t change her, I can only change myself so she can no longer hurt me.  But she made me cry this weekend, and honestly that seems to be the worst thing that she could have done.  That was the start of her treating me better, she thinks she broke me.  What happened was I didn’t have all of my social meds for the day and I crumbled a little but she’s taking it as a victory.

To help me overcome my loneliness and the fun in watching her, I bought a wifi camera that will allow me to log into it and I can watch her all day if I wanted to.  I won’t, hopefully.  But when I’m at home and in my room I can put it on my 24″ monitor and it would be like she was in my room with me.  It just can’t get here fast enough!

*Sammy is a feathered person….and yes, I’m one of ‘those’ pet owners.

Not My Circus, Not My Monkeys.

Mom and I hit the rocks, then the reef, then the iceberg over the weekend.  One realization that came from it was startling, sorta dream-crushing and it needs to go through the journal process before I can share coherently.  Sorry.  The other realization is that I can’t make my mother have a happy end of life.  I can’t do it for her, I can’t ease her from her dystopian state into the station where she believes she belongs.  It’s not my job to make those choices for her.  It’s like trying to have a pet polar bear in Phoenix, just isn’t going to end well.  I will be there to help her with her choices, of course, but I’m no longer going to foist them on her.

The fight was bad, things were said, apology made but we’re still dancing around each other not sure when the other one is going to launch the next salvo of words to try and destroy the other.  Neither of us willing to admit we love the other, and there are moments when she talks to me and I wonder if I still do.  I guess I do, I haven’t called the Shady Pines to come and take her away.  She hasn’t called the police to report me for elder abuse, so I guess we are still on an even keel.

What I don’t really like about myself in this fight is the war in my head of how to behave.  I don’t want to be mean to her, yet I think bad things, and wish I had the wherewithal to do what I imagine.  I get too much pleasure out of calling her bluff and watch her try and squirm away from the consequences.  For example she believes I don’t love her because I won’t dust my room or clean the birds cage on a more regular basis because of her allergies.  So, I’m sending Sammy away to my sisters to live for a while.  My reasoning is two fold, I want the feathers that stay aloft in the air for hours, the one she breathes in, to settle down and to see how well she improves and to, mostly, call her bluff.  I won’t let her use my parrot as a wrench in her manipulation toolbox.

It’s those words, the mean words, that I want to get away from.  I know I’m angry right now and I’m working hard to keep my head from swimming in the anger and frustration.  When I start getting angry I start deep breathing and chanting in my head, but that’s ameliorating the symptoms, not ripping out the foundation of them so I can build anew.  I’m at a loss of how to do this though.  How do you plug the holes and snip off the pour spout of the venom in your brain in favor of peace, love, and …YIKES…I sound like a hippie!!  I don’t want to feel the bile bubble up or the desire for revenge or strut the I’ll-show-you posture any longer.  Part of me is hoping this declaration will be enough, that making the choice to do so will be all I need to do to become that loving, peaceful zen-like person…..I guess that is my circus and one of the many monkeys that are on my back.  Reality sucks, and it’s hard work.  Maybe I should rethink the hippie thing.

“I just want to spend all the time I can with you…”

Raise your hand if you don’t think is a guilt trip…..

Yea, that’s what I thought.

Prayer: The Hearts Sincere Desire

I’ve been praying again, at least making an honest effort.  I still forget that I’m praying sometimes and let my mind wander but I pull it back as quickly as I can, apologize to my Father in Heaven and push forward.  It seems odd that prayer is so hard for me.  That it was nothing before but “Please, Father, get me through today.” (And He did) But because of my meager efforts I’m no longer extremely anxious about taking the forward steps I need to into the haze of uncertainty because I know He will prepare a path for me even if all I can see it one step at a time.

It’s so hard to describe the sensation of this for me.  I’ve always known there was a higher power (mine is God/Heavenly Father/Elohim) for as long as I can remember.  At one point I wanted to be cloistered away as a nun;  a life of service and reflection apparently appeals to the writers heart.  However, I chose the secular world and now my realities are 1) my job is ending 2) my education to be a phlebotomist is a joke in the industry 3) I’ve not stuck anyone in years and 4)it’s going to pay less (especially a non-union job) than the pittance I’m making now. (I’m not even going to go into the lack of writing, lack of journaling and lack of any creativity in my life right now).  My mind races and then collapses from exhaustion.  I think R.E.M. said it best:

It’s the end of the world as we know it

And I feel fine

I’ve never been able to really make plans for my future because I’ve always had the concept hard wired into my mind “Live now for tomorrow we die”.  So now, I pray about it, when the anxiety, fear and general loathing of change overtakes me and then a calm comes and the gentle words of peace and comfort scatter the emotions like cockroaches in the light and I feel fine.

Though I’m still anxious about a lot of things:

  • Mom’s ultimate destination and getting her ready, getting me ready, fear of walking in on her and finding her when I’m alone
  • Money lasting to the end of the month and not being able to buy stuff with my own money
  • Getting money together for my nephews wedding (This is new one, he’s going on a cruise and we’re all invited)
  • Job ending
  • Job searching
  • Being trapped forever with Mom
  • Never getting my eating under control and never being able to eat Golden Mega Stuff Oreos again
  • Dying before I have a chance to live
  • Being around people
  • Dealing with my family and the anger it stirs up in me and the fear of not being able to control it around them

That’s just off the top of my head, the things that I can pick out when it’s spinning.  Though I know everything in my heart will be okay, the chemicals in my brain still won’t settle down and leave me in peace.  I’m hoping to replace my emergency anti-anxiety pills and the half one I take every day, with meditation and prayer.  It is my sincerest desire to be trusting and rest in the Lords embrace and know everything will be okay.  Though my heart is starting to trust my head is still overly paranoid and distrusting of everyone and everything, both physical and spiritual.  It’s not the end of the world, just a change, and I will be fine.  Prayer needs to be my bridge from this life to the next, I can feel that in my heart to be true and I need to be more persistent in following the whispers of hope and orient myself to the feeling of warmth and comfort the Spirit provides when I follow my heart.

Once Bitten…..

There is a scripture that talks about a child being able to put his hand in the den of asps and not be harmed.  This of course is Isaiah divining the peaceable kingdom to come.  I know we aren’t living in the time of peace and harmony so why do I still stick my hand out to be bit every time I talk to Mom?  She is convinced that I truly do not earn my keep, at least not the $12.33 an hour I’m supposed to work for her.  I’m working from home today and she’s already planned blood draw and then her social worker is coming over which will more than use up the allotted time I’m supposed to work per day to “earn my money”  but it’s not cleaning house, it’s not doing her laundry, it’s not feeding her birds, it’s not slaving for her.  She wants unconditional love, unconditional devotion, and unconditional willingness to be kicked in the gut when she needs someone to hurt as much as she does so she has the illusion of control and doesn’t feel alone.  Where I want to hurt myself in those situations she wants to hurt other people.

I know that, I’ve know that she’s angry and scared and is having problems adjusting to the inevitable.  I know this then why is it it hurts and tears at me when she says things like “Well, it’s not like you’re earning your money.  I could probably cut your hours back so K can work full time”.  I know she needs and wants to keep me on “the payroll” because she’s afraid that if I didn’t need my medical so desperately, I would quit her and leave her alone to die.  I think that’s what she has always expected her whole life, that she would die alone because her family doesn’t love her, that she is unlovable.  She’s convinced herself her parents and siblings hated her, and if even half of what she has told me is true, it is probably the root cause of all this, her husbands have abused her, cheated on her (or so her expanding memory keeps telling her), her grandkids (except for one) hate her and she doesn’t know why, I’m only here for the money and benefits.  I can’t seem to change her mind on that.

The bright side to all of this is the medications are working.  I know they are because I’m not ranting about her, knowing that if I keep going on and on about how I do my job would send me into an emotional maelstrom and I would dwell on it for hours if not days.  I might still pick it up from time to try to figure out what do but I’m able to divert my thoughts when I realize I’m starting to spin before I’m out of control.  Amazing what happens when you take your pills every day.

The angry person that I am wants to tell her what she can do with her $12.33 and comprehensive benefits and put them somewhere the sun doesn’t shine.  But honestly I couldn’t afford to pay for COBRA and also lose the pittance of a paycheck that I get from my second job.  Heaven knows I’m not able to afford everything else with my first job.  Pushing the anger aside I’ve been able to think clearly enough and realize that going without medical is no longer an option in the US, and ways have been provided to help those of us who can’t make their ends meet.  So, what this means to me is that I don’t have to work for her any more, I can be her daughter, do what I am emotionally and physically able to do for her and take back the control I need for my own sanity.  I know, I know, control is an illusion, no one has control.  Despite that, I need to protect myself as much as possible as she starts to deal with her own end-of-life issues I want to be there with her and I want to help her and prepare her but not at the expense of my own sanity.  If anyone is going to drive me over the crazy cliff it will be me.  I am the mistress of my own fate.

So this gives me a whole new list of things to do:

  1. Contact Covered California for help in figuring out the system (done)
  2. Get the cost of COBRA
  3. Sign up for VHP but not on Medi-Cal.
    • Medi-Cal patients are treated differently than VHP participants.
  4. Assign my hours over to K and then quit my job as Mom’s “caregiver” and then start taking care of her as her daughter.

I doubt she’ll stop trying to hurt me, but at least she might have to think twice because I’m not getting paid to be her personal walking and talking Damnit Doll.

The Avoidance Obfuscation Sublimation Observation

Mom was busy yesterday.  She met with her Hospice nurse today, she had a large job of instructing someone how to make her famous potato salad and yet still carved out time to accuse me of being lazy, slovenly and piggish.  Okay, the piggish statement was a joke, though knowing the comment “Don’t eat it all” makes me see red.

I can’t get mad at her, well, I can, I just can’t let it blow out all over her.  She knows she’s pushing my buttons. She even admits to it.  I don’t know why.  I’m not sure I want to know why, it would probably make my head implode.  I know my emotions are in a snarl as well so I think any kind of joke or button pushing will hit me so totally off center that there isn’t really any hope for me not to walk away and keep walking.  I can’t do that, I don’t want to be that person.  I won’t be that person.

I have noticed when I’m angry, really, really angry I stuff it down with inappropriate behavior, like Mega Stuff Golden Oreos (the absolutely most perfect Oreo in the whole universe), I avoid coming home by “researching” things on the internet and sorta stretch the truth as to why I was late “Traffic and red lights all the way,”  Never mind that I left an hour or so later than when I got off.  The last few days I’ve been sublimating my anger by buying stuff for her.  Not horribly expensive, but expensive looking.  Well, expensive looking on a monitor.  Trinkets, baubles and tea.  I signed her up for Tea Sparrow, it’s a monthly tea delivery site out of Canada.  It’s going to be delivered to her without my name on it so she thinks she has a secrete admirer.

Though the goal is to make her feel loved, in truth it’s to help me assuage the guilt for feeling so irritated and angry with her.  I did this in MTC 150 years ago when my companion and I didn’t get a long at all.  I would have Elder Kelsch pick up something from the book store and post it from the outside.  It didn’t change the way she felt about me, but it did make me not liking her….well…hating her….more justifiable to me.  In my mind it took the power I thought she had over me, actually the power I gave her over me, and magically transformed it in my mind as me having power over her.  Power is a lot like control: It’s an illusion.  It was before I realized that the only power I have in this world is the power over myself.  I’m doing it again.  I’m trying to supplant the anger, frustration and emotional distress in my heart and mind by buying her things she really doesn’t need, so I can make her feel better but in reality I want the power over her, in my mind anyway.  Luckily for me, though she hasn’t changed much…… well ever……..but that shouldn’t deter me from doing my best in making her last days loved and as nice as possible.  Even if it means staying up and extra hour or so to do the dishes so she doesn’t think I’m leaving all the work for the morning person K.

But seriously, if I don’t do a button-ectomy  soon she is going to drown in chiffon scarves, packets of tea and crystal watches.

Lucy is an IDIOT…….5₵ Seriously?

I don’t really see how Lucy kept her sanity while counseling people for 5₵.  Maybe chasing the ever aloof Schroder is her release from the cares of her patients.  5₵ is not nearly enough, $5,000 an hour doesn’t even intrigue me.  I am as interested I practicing psychiatry or participate in the mental health profession about as much as Charlie Brown liked Peppermint Patty “that way”.  Yet Mom seems to insist on using me as a one-stop-shop kind of therapist where she can drop off her cares and troubles and have me just happily take on the vitreous she spews about me, about my sisters, about how horrible and unsuccessful her whole life has been.  She is hurting in so many ways because the prednisone seemed to have ripped off the rose-colored glasses she used when looking backwards at her life.  With clearer vision she, of course, begins to compare hers to the people we know now in Saratoga California and they are successful and well moneyed.  She feels that she is entitled to having money because she made bad choices that really hurt her, if not physically then emotionally.  I just wanted to grab her at one point and tell her to get over herself and stop dwelling on what you don’t have and on what she does…..but that too, would give her cause to call someone and accuse me of Elder Abuse so she could add to her cadre of horrors.

My portion of her raving comprised how I don’t do my work here, and what I do do isn’t worth my hire.  She wants me to put in at least 45 minutes a day, because most people in the world have a full time job AND come home and fix dinner.  Heaven knows she did.  Though the kindness I show her is nice, it’s not what I am hired to do, and I need to put more of an effort in to make sure we don’t lose the new care giver.  Apparently she wasn’t happy with the three or four things I left in the sink.  So, I did the math.  52 hrs a month works out to be about 1.75 hrs a day.  So, I will do my hours and then be done with it.  There!

Making that decision seemed to end the conversation in my head until I started to peel back my motives and her motives behind everything.  Even before she got on the steroids she was hinting that I wasn’t living up to my end of the agreement.  I was feeling overwhelmed with work, church, family, OA, and now school.  I’m both excited and scared for that.  But it means that she will be seeing less of me, she is scared that she will be left alone, or whatever it is in her brain that makes it hard for her to let go and let me be out in the world.  It’s the “I don’t feel well, can you come home early?” instinct that she doesn’t say outright but the actions are there.  Yes, I’m inferring a lot of this from her body language, and from past behavior I have nothing specific and recent to present.  As much as she wants me to fly and to reach my goals, she doesn’t want me to because she is afraid I’m going to quit her and go to Oregon.  I’m not, I’ve told her I’m not but because of how many times she’s been hurt in the past, because of the abuse and the feeling she isn’t worthy to be loved, because the only tools she has to express herself is anger and venom she doesn’t have the wherewithal to not only be open and honest with me let a lone herself.

So, what does this mean to my future as a phlebotomist.  Am I going to quit and stay home with her….HELL NO.  I need to do this, and I need to do this now.  I need to push myself until I can’t take another step.  If I can’t do it, I’ll add more medication to the pile until I can.  (Yes, I know, drugs aren’t the answer, but they are a tool).  I will be conscious enough to put in my 1.75 hrs a day, which will be even less per day if I have to give some hours to the new one to stay, but I won’t just be her employee, which is the true meaning behind the “There!”.  I was going to work for her and then go to my room and go to bed.  That’s not who I want to be, that’s not who I’m meant to be.  A fully mindful person doesn’t allow her own anger from seeing the thorn in the side of the person that bit her to begin with. 

The one thing I need to never, ever do again, is to be Lucy, my own sanity is worth more than 5₵.

 

Wanting Vs. Doing Vs. Needing

I want……….

  • to go back to school to spiff up my phlebotomy credentials (long story)
  • to write at night and on weekends
  • to have a clean and neat room, with my bed made and laundry done
  • to go on hikes on weekends and maybe learn to Glamp from time to time
  • to make jewelry for gifts and for myself….maybe even to sell
  •  to keep working a full time job so I can have a full time pay

Vs.

I’m doing……….

  • 8hrs a day on a less than taxing job but still need to take a nap in my car
  • I’m registering for school but will have to do it in person instead of online, terrified I’ll sleep through it or fail
  • I clean my room by turning off the light and turning on the TV
  • I get out of bed late on weekends and then require a few naps to get through the day
  • The thought of pulling out and putting away all my jewelry making stuff is exhausting in itself
  • Honestly, I don’t know how I’ve been able to keep a full time job.

Okay, I’m tired right now. I really have no reason to be, other than I stayed up too late last night. But when I’m in these moods I wonder if I will ever be able to have a normal life, if I’ve ever had a normal life. My Mom is insistent that I just need to “push through” and “fight back” and basically “get over it” and I will be fine. Sometimes I think she’s right, very rarely, and I try and spin myself back out of control. I think I need a routine…a “doing” and slowly build from there. I keep changing this idea of what my day should look like beyond going to work, going home, going to bed, getting up and going to work, going home, going to bed.

Right now I’m thinking that Mediation is the direction I should be going in. Of course I can’t do that until I have a space cleaned in my room, which means I need to work in my room, which means I need to do my laundry and find a meditation pillow and make hand knotted-silk strung beads and a tassel for meditation……See how the wanting and the doing are always dancing?

I need to……….

  • JUST meditate

    • I don’t need a clean room to do it
    • I don’t need my laundry clean to do it
    • I don’t need a special pillow to do it
    • I don’t need specially strung beads to do it (yet, I want them because it means shopping and creating)

The only thing I need to do is make time. Or in my case take time.  And take comfort in the hope that the needful will allow for the mental space for doing the wanting.

The End is Nigh….or not.

The diaphanous veil between the living and the dead is getting thinner.  I can feel my father closer, my brother.  They are waiting.  I can’t really say this to my family because we’ve been saying “Mom won’t make the next XYZ” for the last 24 years. It’s gotten to the point where we won’t believe it until we see it.  And who knows how long a person can.

I want her to have a good end of life, but I don’t know how to bring that about.  She has a DNR, C. will make the final judgment if we need to turn off her machines and pacemaker. (there will be mighty discussions between the three of us girls before hand, it’s not just hers alone)  Her cremation is paid for, our plan to have a boat take us out to the Golden Gate Bridge or beyond to allow her to travel the way she never could in mortality.   I guess now it’s just a matter of all the family to make amends with their own soul and forgive grandma/great grandma and let her go being loved.  She wasn’t trying to hurt us, not consciously anyway.  She wanted what was best for us, even if what she wanted was skewed towards what she needed more, but truly is that her fault?  She relied on the way she was raised, and the pain she experienced on our side of the conversation must have been worse as she believes she wasn’t loved or wanted.  Mom wanted us, she loved us to the best of her ability and with the few tools she was given, and isn’t that all what we can do?  Holding someone to a standard you hold yourself to is just as unfair, lacking compassion and sincerely extremely selfish to the point of narcissism.  True narcissism isn’t something you choose, it’s not like fat where you can go on a diet and emerge a shadow of what you used to be….Narcissists don’t believe the need help or to change, the rest of the world should.  I wish I could take this understanding, acceptance and love and share this enlightenment I’ve been given to my family but I can’t, and even if I can will they have the frame of reference of the months past to understand it with.  Or the desire to truly forgive her and let her go?
The depression and the tentacle like grip the other accessory ailments has robbed me of the ability to feel a lot of feelings.  Well all feelings except anger.  With the containment and proper placement of that merciless flame  the other emotions are coming to the surface and I can say something I never thought I would be able to say.  I love my mother.  I started this journey hating her and silently planning her funeral like a mother plans her daughters wedding.  My biggest fear was that I would hum “Ding Dong The Witch Is Dead” in my pew at her funeral, now I’m not afraid to loose her, or my reaction to it, but mostly that I will be unable to take care of myself without her to remind me to eat, to wake me up when I fall asleep on the couch, to guilt me into cleaning up the house. (I know, I’m a grown up, for heaven sakes, I should be be doing that for myself already).
This feeling of love for my mother and the spiritual lifting I’ve had over the last several weeks makes me wonder if that’s why I am able to feel the veil so close.  The only thing you really take with you is your knowledge and your love.  Love you give is the silken strands that weave your body for the next life and the love you receive is the decoration.  Or so is my belief.
(I’m not saying my Mom is in the throws of dying, she’s not.  I do know her body is starting to give up and betray her in ways she never thought it could.  I’m just saying there are people waiting for her and I can feel their presence.  It could happen today (better not it’s my birthday and her sister already died on my birthday) or it could happen next week/month/year/decade etc.  My nephew J has a saying “At the end of time there will be Dick Clark (rip), Grandma and cockroaches.”  There are days when I look into her eyes and see the steel will to live and I actually start to believe that he isn’t far from wrong.)

Control is an Illusion

I know this. I’m not stupid. Yet to gain the serenity promised in the SERENITY PRAYER I need to exert the kind of control over my life that I’ve never really wanted before. I need to become a machine. I need to make a list, check it twice, and then methodically, mechanistically go through each one with the promise there will be sleep at the end. It doesn’t help that my goal of coming off the anti-depressants isn’t working as well as I’d hope and staying in bed hiding among the varied dreamscapes I find there is all I want to do.

The lack of meds, the lack of control over the type of control I want in my life and the anger that’s welling up in me for having to have to shut down a goodly portion of my emotional life again in favor of sanity is making me want to take back the realization of March 2013: my name is Pamela and I’m a compulsive overeater. Maybe I’m not. (Anyone else catch the compulsively long run-on sentence?)

I am. I know I am. And try as one might you can’t unknown something without a fairly major stroke. It’s just right now it seems like one more thing on my over crowded to-do list.