Facing Frailty with Faith

The post I created on November 17, 2015 was about how I finally crossed the line between void and light….though the dimness was about the same but my psyche started leaning more towards the light instead of the dark (and bed).  I started reducing my meds, and then I started putting requirement on me like getting my CNA and HHA so I could get a job with hospice.  The only thing I learned from that course is that being a CNA is not what I want to be.  The information and skill set I learned helped me with Mom, but again, I don’t want to do that again.  Maybe if I were a mother myself the wiping my mom’s nether region wouldn’t have been as traumatizing……I dunno.

I mentioned that I came down on my anti anxiety pills, which is good, and I haven’t gone back up other than as needed for extreme stress/anxiety inducing situations….like the day Mom died.  I think I took 2 Xanax throughout the day instead of just one.  However, I’ve held steady with my other meds for the last 2 years since I wrote that post.  Now I’m unemployed, I have until February 10 before insurance goes poof so I need to get back into the field of being an in home support person.  I just signed up for school, so that’s going to put a strain on me, and I can’t exactly go down on my meds at this point…..

I’m scared.

What if I can’t afford COBRA, or Covered California?

What if no one wants to hire me because of my age/weight/toothlessness? (Mom liked to hammer on that nail all the time and I can still hear her “You’d be so pretty if you just got your tooth fixed” in my head).  We’ll get to this kind of stuff some other time.

I am teaching myself to self-soothe that doesn’t include cookies or candy or shopping.  I remind myself constantly that Heavenly Father didn’t create me to fail.  If I fail it’s because I fail to try.  I have to put my foot out to step and trust the ground will be there.  And though all these sentiments are rather trite they are no less true.  I just don’t know how to quell the fear that I a going to overload my brain and then rush back to the safety of my bed.  Staying in bed is so safe, so peaceful and so not the way to get anything done, but the warmth convinces me not to care……

I guess I sort of went off point, or maybe not.  I’m not, for the lack of a better word, better.  I’m also not back in the void.  I can feel the attraction still, the safety of the known.  I am looking forward to taking the Light-Rail to school, studying in the coffee shop just down the street from the school and how I’m going to study.  (key words, looking forward to)  I have the mobility to go back to the void and look in and choose not to be subsumed, and it can be a big pull some days/hours, or I can walk back out to the shaded sun I’m in now.   Maybe it will break me, maybe I’m not ready but it’s not going to stop me from trying.  Papa always paraphrased Matthew 17:20 to me:

If ye have faith as a grain of mustard seed

nothing shall be impossible unto you.

I should be able to muster up the faith of a tiny mustard seed.

New Year, New Dynamic

Mom died.

It’s been about seven weeks since her passing.  Time seems to go buy at different speeds at the same time.  I’ve hit new levels of stooopid I never knew I could.  I’m still not eating right, sleeping well or taking care of myself as I should.  The only thing I’ve been capable of doing is making crochets shawls.  I can count to 8, I can sit and watch it grow and not have to do anything else.  Since December 1, her last time to the hospital, I’ve made seven shawls.  One is my “house hold” shawl because I would rather wrap up than turn up the heat.  I seem to  keep going back to the hook for comfort.  They feel like hugs.  I’m trying to make one for all the women/girls in the family for the boat ride out to skater Mom’s ashes.  Hopefully I will be more back in the world by April.

I  haven’t really cried yet.  Maybe writing this out might break open the flood gates and release the torrent of tears that are just waiting for the opportunity to flow.  I don’t know why it seems so hard to express myself that way.  It could be the general fear of crying; if I start I won’t be able to stop.  Or it could be the medication is still providing the buffer that keeps me from completely dissolving into a puddle.  I’ve gotten the basics down in my journal but not really the emotions.  I wonder if I’m actually going to have any.  I mean, it’s not like this is out of the blue.  I’ve spent the last 12 years taking care of her as she, well not exactly slowly, declined.  The last three to five years have been the hardest, and living with her and taking care of her really tore the wellspring of hope out of me several times.  It did happen really fast, in the hospital on the 1st, back home by the 5th, then dead by the 10th.  There wasn’t  a rally coherent good by on her end due to the hypoxia from the lack of oxygen.

My team of professionals and myself have held the theory/belief that part if not most of my depression and anxiety was due to my environment.  Maybe I’m overmedicated now that the environment has changed or maybe I’m so completely overwhelmed (I had my car broken into after the memorial service and I drove myself to see my sister C. run in the Carlsbad marathon, I lost my job when I lost my mother, going back to school in February, and creditors filing suit).  I’m overwhelmed.  I guess I should stop trying to push myself so hard and try to do things one day, one task, one blog post at a time.

I’ve had some dark days, but in general I still have the light and hope for my future, so I don’t believe I’m back in the void, although, truth be told crawling back into that warm dark place to hide sounds really inviting..  I’ve had more bouts of anxiety than depression, I’m becoming more aware of my desire to take care of myself (like eat, bathe, change clothes, etc.)  In some ways I feel like I’ve been reborn into this world but I’m going to have to fend for myself.  I’ve got to find a job that pays well enough for me to write until the nectar of creativity runs dry.

My nephew gave me the best advise yesterday.  I didn’t want to go home, it felt like a trap so he told me when he feels that way he goes out into the world and tries to find something beautiful.  So, I went home briefly and grabbed Sammy and we took a trip to the coast and watched the boats in the marina and on the way home on Highway 35, I got pictures of a beautiful sunset over the foothills in the valley.  It was beautiful and my anxiety was calmed.

Clipping Time’s Wings

Everyone knows that time flies, and I’m getting to that rounded age to see it zoom by at super-sonic speeds.  I was looking at the calendar of this blog, how many times I wrote in one month, how when I was in crisis there would be a darkened square two to three times a week, and when things were masquerading as ‘normal’ it was lighter.  Then I saw when I birthed this baby my jaw dropped.  May 2011!!  It’s been over five years, and before that it was about five years before with round one.  I’ve been trying to grapple with this for over ten years now.

The goal of this blog was to find my way back into the light but to make sure I didn’t trip the dark fantastic again if at all possible. I know life isn’t going to be all sunshine and flowers, there will be bouts of sunburn and allergies too. Now where once there was blackness and anger there is hope and joy . I am not cured, I don’t know if there is a cure, but this is working for me, the writing thing, I just wish it didn’t need to take so freaking long. I guess I should work on my instant gratification issues too

The new goal is to re-post the enteries and figure out a plan of attack in the event of a fresh hell in the void and to shore up the processes I found helpful. Time willing it shouldn’t take another FIVE YEARS!

Reverse Pride

Reverse pride isn’t humility.  Humility is humility.  Reverse pride is when you are prideful of the fact you aren’t better than anyone else.  We all know this idiom:

Pride goeth before the fall.

I didn’t think that really applied to me because I was on the floor, I would never be ‘worthy’ of the grace of God, to take part of the sacrifice Christ provided for me.  Which is why my thoughts when I do something less than Christ-like I hear, “It doesn’t matter, I’m going to hell anyway”  I wrote it off to self-esteem problems.  I’ve been reading a book called “The Miracle of Forgiveness” and in the beginning it talks about pride.  It talked about how pride is also telling God who/what/where/why anything that isn’t in your responsibility to change or judgement you can pass.  I realized in a moment of clarity I hadn’t just been telling myself I’m bad and unworthy but I’ve been telling Christ I’m bad and unworthy and the grace He secured with his blood isn’t going to save me.  EVERYONE will have a share of His grace, no matter what they’ve been in this life.  Life is eternal, growth is eternal, the Grace of Christ is eternal.  With this knowledge came the realization of there is absolutely nothing I can do about my future, well, other than be the best person I can be.  No matter how messed up I perceive myself to be.  I have no control, and I am not perfect and neither of those are within my grasp or prevue anyway so I’m trying to figure out how I can better utilize the time feeling like an eternal-bug-in-the-radiator kind of person.  I’m moving forward towards my future again, it’s nice.

This begs the question: Why do I feel this way?  I’m not a bad person (in comparison to like Hitler, Dahmer, and the ilk).  They’re going to receive grace.  I’m not ‘useless’ or a ‘waste of clay’.  Where do these thoughts come from?  Is it that sometimes when someone corrects you by calling you stupid, where every other time it just bounces off your psychic armor until one day the chink is displayed and you are mortally wounded?  I’ve called myself stupid most of the time when I do something wrong, from burning dinner and blowing a tire to stubbing my toe on something I’ve left on the floor.  I’m far from stupid.  I still compare myself to others and, yes, that’s wrong, but I’m finding out all the useless information I seem to gather has made me rather intelligent.  Not to be prideful, but my last IQ test (online) I hit in the high 120’s.  If I could do math it might be a little higher but I suck at math.  How can I be so easily fooled and so completely without guile that I would believe everything bad and evil that I am told both inside and outside my head?  The bigger question is, how to I seal up that chink so the darts of negativity aren’t hitting the pink flesh beneath?  I am correcting my thoughts when I become aware of them, I try to keep positive quotes handy on my phone, my notebook, my walls, but how can I paper the inside of my head with them?  Any suggestions?  Please share.

Slip Sliding Away

In a lot of ways I’m still trying to stop the slip so please bear with me, I’ve tried to write this a few times and it just comes out in disjointed gibberish.  I will try to keep everything as simple as I can without too much fluff, which is when I get generally get lost.

I don’t remember what day last week I slept through my early AM pills.  Because it was late I didn’t take them but I did take the one I should have taken after breakfast.  It had been close to a full week since I was taking all my meds early, morning and evening pills.  I was barely holding on.

Tuesday I finished my CNA course and we had a certification program where we were all presented our papers which is my ticket to take the state test to start a new path.  It wasn’t that big of a deal to me until it was.  I made a point of getting a picture so I could put it in my journal.  I looked horrible.  The crush of the room was bothering me and ramping up my already jarred psyche so when it was over and the eating began I left.  I knew if I started to eat I wouldn’t stop and no one and nothing would be spared.  And there was food waiting for me at home and I could binge to my hearts contempt.  What I forgot to mention is that though I laid out my meds the night before, I didn’t take them…..and you can repeat that all the way to Saturday morning but by then it was too late.

Thanksgiving for my family was on Friday.  I was in a full blown anger hurricane and no one was safe.  I stayed in the corner and pretended I was ‘tired’….well, tired of all of them.  I ate only what I wanted; turkey, potatoes and dressing.  I was kind to the kids, although the youngest was put on my lap and when he felt the disruption in my aura he began to cry and try to get away from me….I really couldn’t blame him.

Saturday I took my pills again but my heart was racing, my breath was shallow, my blood pressure was all over the place and I just wanted to scream – I took a tranquilizer….and tranquil I did become.   My emotions flattened out and I slept for three hours, but my mind still hasn’t returned, it still can’t grasp anything and hold onto it for a long time.  Words slip off the tip of my tongue, ideas float just out of reach and my memory pulls up the wrong information and my mouth can’t stop it from tumbling out.

I’m back on my three doses a day.  I don’t know if I need to continue to slip to get back down to stable ground or if I need to start the climb again to where I was.  I just hope which ever it is it doesn’t take me back to a place I don’t want and can’t be again.   If there is any take away from this whole hellish experience is: DON’T GO OFF YOUR MEDS.  I’m not well, I’m not better, I’m not quitting.

Crossing the Line

Sorry, I’ve been distant, silent even.  Mostly because I did something wonderful and it confused me.  Let me explain…..

I went on vacation with my family, it was a wedding onboard a cruise ship and we were invited to join the happy couple for the honeymoon.  We all had our own rooms of course.  I brought a long two books; one pleasure and one enlightening.  I chose the Enlightening book first.  Before the end of the first day at sea I grabbed my book and went up to the top deck, sunglass/reading glasses in hand and a hat and read.   Within the first ten pages I came across a statement (that I can’t quote because it’s not exactly what I read but what I needed to hear) to the effect of:

There comes a time when introspection becomes indulgent.

It struck me so perfectly at that moment and I realized, every aspect of me said it was time to move on and move forward.  There was nothing more I could do with the deep dives into who, what, and why that makes me who, what, and why I’ve become.  I needed to put myself out there and try to put into place what I have learned, to build on the foundation that I have laid and hopefully not have any dead bodies hidden in the cement.  At many points in life we need to stop and do the self evaluation/inventory/mind-tripping that helps us move to the next level, but I feel like I’m all caught up now….

Crossing that line, the invisible line between the two worlds instigated a miraculous change in my psyche: I’m happy, I’m hope-filled, I have more energy, I am making plans for my future and are anxiously waiting to put that plan into motion.  (Mom is still doing well, so things are still as they were).  Crossing that line also gave me the push I needed to start  whittling down my meds.  I’m off one of my anxiety pills completely, I’ve cut my Lexapro in half, I’m still taking all my puppy uppers (Welbutrin).

I don’t know if I’m ready to go down another 10mg on my Lexapro.  This last jump down brought up the realization that I don’t really have the skills that I thought I had when  I was fully medicated, and emotions are starting to break through the chemical barricades.  I’m getting caught in the angry loops, but I have more success of talking myself out of them before I spin out of control.  I get overwhelmed and stymied easily , but if I just plug away at it, it gets done.  I’ve had to put some exercises into place so I could deal with the mental stuff, one of those is writing every day.  Which brings me back to the confusion….

For the longest time I used this blog as an integral part of my self exploration.  Anything too private was taken care of in my journal, and I’m back to journaling now too, but if continual introspection is self indulgent, it’s not something I should be engaging in if I want to move forward in my life.  And I’ve made some major strides in my life from March to now, but I didn’t know if I should start a new blog post-depression to write all the plans and the executions with both successes and failures or if I should just continue here; or should I do it at all?  I miss it, so I need to keep doing it .  I found that blogging my personal truths out into the world is an act of courage and bravery that makes me feel more courageous and brave in the real world. I think it’s not self indulgent if it isn’t wallowing in the dark but instead sharing the joy and excitement of rediscovering my life now that I’m outside the void.

Any input from my readers would be helpful.  Please,

Surrender Follow Up

I can breath again.  I never understood in the OA book how they wanted me to surrender to a Higher Power, I thought I had given myself to God and Christ years ago, but after the surrender, I realize I really haven’t. I don’t think I fight against Heavenly Father, per se, but I don’t always do things His way (meaning I’m addicted to the hard way) and in that I need to surrender my faith and trust that He will carry me through. I know if I could I would have a higher sense of the peace and comfort I’m feeling now in what I’m doing in my whole life. I can be a stubborn idiot in the face of simplicity..

On the darker side of the depression, I won’t surrender.  Yesterday I was close to tears more than thrice and I have no idea why.  It’s annoying to have emotions.  I know I will eventually need to give in and feel them again, but right now is not a good time.  I’m fairly happy, I’m hopeful and I’m planning for my future.  I have everything I need.  My wants on the other hand……

Gobsmacked by Life

So, when last we met, dear reader, I was embarking of under-employment but ever so hopeful things would continue on the course I had set it on.  I stopped climbing the walls, so to speak only to have the freaking wall fall on me!  I planned on giving myself one week off from work, which is reasonable since I hadn’t really had five straight days to myself since, well, since I don’t remember when….and starting the next week Mom shot up a temperature to like 103.1 and then it would go down, then back up.  I got the temporal thermometer to see if the digital one was not digitizing the information the way we wanted but it was telling the truth.  Which basically means now I have a really cool thermometer…..but I digress.  I called 911 and had them take her to the ER in Mountain View.  If there is one thing I can say about being on anti depressants and anti anxiety SSRI and dopamine enhancers is that when you are faced with something serious your emotions shut down and you can focus on the task at hand get things done. Well, sort of.  Apparently  was being a real pain in the caboose and my humor wasn’t what my sisters would have liked.  After a few long, tiresome hours they realize that Mom was dehydrated.  Who knew you ran a temperature when you are dehydrated.  S. had heard about it when she went through her medical assistant training but she wasn’t sure.  Once that was determined they decided to give her IV fluids and see if it brought her double digit BP back to the normal range….well, normal for an 85 year old woman.  They admitted her around 2 am, I went home and had dinner, took a chill pill and went to bed around 4am.

What I learned from this experience is that 1) the right hospice agency makes all the difference and 2) never make plans that you can’t put off for later.  We’ve changed our hospice agency which is more aggressive towards the pulmonary set, unlike the last one that would have been happy for me to give Mom morphine to calm her down and let her die in her sleep.  The hospital doctor sent her home with a nebulizer and between me and K we have been militant about her getting her treatments, eating whether she wants to or not, and drinking at least two quarts of water a day she is gaining ground.  Just as she started to get back on her feet the holidays descended like a biblical plague.  Okay, so I’m not a bit holiday fan but being broke, being literally tied to the house like some house bound prisoner because Mom doesn’t like to be alone and “misses me” even if I’m in the other room.  Did I mention she’s almost as deaf as a door knob?  (hearing aids are on the list of things to do in the New Year).

I guess what I’m blathering on about is that I’m tired, I feel like a well used rubber band that is still functional if you don’t push it beyond it’s but when too much pressure is applied  it will loose the last of it’s elasticity and then when pushed father will snap and crumble to bits.  My doctor thinks I’m doing fine, but then we didn’t talk about how I imagine sawing through my arms again, or how I want to use a razor to carve a cross hatch pattern from my wrist to the bend in my elbow.  I won’t do it, I know I won’t, I’m too big of a sissy when it comes to physical pain but he seems to think it is something that should be reported to him.  I wish he was tech savvy enough to just read this and prescribe accordingly.  I can’t go up any further on m=any of my meds so what other choice does he have then to tell me I’m doing good and hope the placebo effect will see me through until the stress passes?

I’m pretty sure this will be my last entry for 2014.  May the New Year be bright, healthy and prosperous.  Thank you for reading and following me.

Honest Gratitude

I’m not alone, for the longest time I thought I was the only one in my peer group that was stuck inside the void.  Of course I had isolated myself to the point that I was the only one I saw mostly and honestly, I was ignoring me.  I shrunk away from all the love at church because I didn’t want them to know, but I knew they knew, and I was interpreting their love as pity.  I knew they knew because years ago for an essay in my genealogy class, Mom telling people to get sympathy for the heavy burden I am to her, and I’m pretty sure it’s written across my face most of the time.  But to face them, to accept their love, to say “I’m doing well” when they I was lying made me just want to stay home, so I did.

I’ve been going back to church, and I’m hoping to make it a life-long habit from here on out.  I’ve been listening to the topics of conversation, the messages between the topics and I’ve found that a lot of people that appear so happy, as if they have everything they want/need/desire are getting sucked in, stuck in the void that I’ve been in.  The insidious nature of the void is that it is a palpable darkness that your eyes are for all intensive purposes blind.  No one calls out encouragement while they’re in there because no one wants to be found or helped or comforted because we don’t deserve it.  Or, so’s my experience.  The darkness can be a blinding light to some, a red ethereal heat, or a frigid cold that burns to the touch but it is our own hell.  The trouble with having your own personal hell is that no one can help you decorate it because they can’t see it.  But they want to do something to “brighten” things up to help you.  People brighten up your hell just by being there, not by making you explain and explain and explain how things are working inside your head only for them to look at you and honestly say “I don’t get it.  Why can’t you just make up your mind to get over it?”  For me, when someone would say that, I’d want to scream and throw things at them…preferable food that stains or smells bad.

This time around, hopefully my last time around, I’ve been honest.  I’ve been truthful with people when a question is asked that I am capable to answer from my experience.  I can’t address their experiences directly because I don’t know them.  It’s like having someone explain how salt tastes to them without using the word salty.  It can be done, but it’s really hard to know the words you need to describe it.  By being honest about my depression, I’m hoping to rip the mask off the face of depression and stare at my own face and not be ashamed, to abolish the stigma from you, your family, your friends and those that just think you should get over it.  Knowing you aren’t alone, even though your experience is unique, the concept of depression is ubiquitous is a comfort to some, a sympathetic pain to other and a reality the world needs to accept, understand and get over their issues about it.

To be honest, I’m so grateful for this depression, this time around.  (yes, that’s probably the meds talking).  What I’m grateful for is the opportunity I’ve gotten to stitch the tear, rebuild the destroyed and fix the broken so I don’t end up here again.  I’m not sure that I won’t.  I’m still very easily sent of kilter if something happens or my plans are upset in any way, but I balance out faster, I gather my strength and I push forward.  Honesty and gratitude seem to be working hand-in-hand for me.  I think I need to stop using this site as a pity party on ePaper and start using it to be grateful, honest and helpful for others.  It’s just figuring out how to do that and making the time for it and not using it as a way to hide from the issues I’m dealing with

Stay tuned, boys and girls, it looks like things are going to change (for the good, I hope)…….

Prayer: The Hearts Sincere Desire

I’ve been praying again, at least making an honest effort.  I still forget that I’m praying sometimes and let my mind wander but I pull it back as quickly as I can, apologize to my Father in Heaven and push forward.  It seems odd that prayer is so hard for me.  That it was nothing before but “Please, Father, get me through today.” (And He did) But because of my meager efforts I’m no longer extremely anxious about taking the forward steps I need to into the haze of uncertainty because I know He will prepare a path for me even if all I can see it one step at a time.

It’s so hard to describe the sensation of this for me.  I’ve always known there was a higher power (mine is God/Heavenly Father/Elohim) for as long as I can remember.  At one point I wanted to be cloistered away as a nun;  a life of service and reflection apparently appeals to the writers heart.  However, I chose the secular world and now my realities are 1) my job is ending 2) my education to be a phlebotomist is a joke in the industry 3) I’ve not stuck anyone in years and 4)it’s going to pay less (especially a non-union job) than the pittance I’m making now. (I’m not even going to go into the lack of writing, lack of journaling and lack of any creativity in my life right now).  My mind races and then collapses from exhaustion.  I think R.E.M. said it best:

It’s the end of the world as we know it

And I feel fine

I’ve never been able to really make plans for my future because I’ve always had the concept hard wired into my mind “Live now for tomorrow we die”.  So now, I pray about it, when the anxiety, fear and general loathing of change overtakes me and then a calm comes and the gentle words of peace and comfort scatter the emotions like cockroaches in the light and I feel fine.

Though I’m still anxious about a lot of things:

  • Mom’s ultimate destination and getting her ready, getting me ready, fear of walking in on her and finding her when I’m alone
  • Money lasting to the end of the month and not being able to buy stuff with my own money
  • Getting money together for my nephews wedding (This is new one, he’s going on a cruise and we’re all invited)
  • Job ending
  • Job searching
  • Being trapped forever with Mom
  • Never getting my eating under control and never being able to eat Golden Mega Stuff Oreos again
  • Dying before I have a chance to live
  • Being around people
  • Dealing with my family and the anger it stirs up in me and the fear of not being able to control it around them

That’s just off the top of my head, the things that I can pick out when it’s spinning.  Though I know everything in my heart will be okay, the chemicals in my brain still won’t settle down and leave me in peace.  I’m hoping to replace my emergency anti-anxiety pills and the half one I take every day, with meditation and prayer.  It is my sincerest desire to be trusting and rest in the Lords embrace and know everything will be okay.  Though my heart is starting to trust my head is still overly paranoid and distrusting of everyone and everything, both physical and spiritual.  It’s not the end of the world, just a change, and I will be fine.  Prayer needs to be my bridge from this life to the next, I can feel that in my heart to be true and I need to be more persistent in following the whispers of hope and orient myself to the feeling of warmth and comfort the Spirit provides when I follow my heart.